As most of my friends and family know Pyper has suffered from febrile seizures since a few days before her first birthday. We have went through several strenuous test that just broke her Daddy and I’s heart watching her be so brave. For a slight second it was thought to be epilepsy, fortunately for Pyper it was not. Although, she is not epileptic she did get a seizure everytime she hada fever up until last May. We are going on a year now seizure free! and unlike epilepsy febrile seizure you can grow out of. I ran across this website while reading an interview with Greg Grunberg, he is an actor currently starring in Heroes and he has a son with sever epilepsy. He recently underwent a successful surgery to remove part of his brain that were causing the most seizures (he was having close to 100 a day now he has a few a week now that is success!) . Greg started this website to get people to talk about it, not to be afraid of the disease but to be educated on epilepsy. I see it as across the board, Py has had seizures at the day cares she has been in and all we could think was I hope the kids weren’t traumatized. Maybe if parents and friends talked about it and understood it the fear would disappear. So my friends……TALK ABOUT IT.
I’m so glad she’s outgrowing these.
Thank you so are we!